Advocates in Action

Have you ever felt intimidated, confused, or overwhelmed when trying to navigate the health care system? In those moments it can be hard to advocate for yourself and those you care about. Join our host ...more

Latest Episodes

5

October 07, 2020 00:26:05
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How Two Moms Became Greater Together

Finding appropriate treatment and support for a child with a rare disease is difficult in any circumstances, but it can be extremely challenging in rural Alaska. Specialists are few and far between and travel often involves hundreds of miles and long plane rides. Greta and Mary Middleton first crossed paths as they attempted to find good care for their children with special needs. They now work together to empower other families, locate and access good care and implement policies that address the complex problems they face. Visit our website to explore show notes, additional episodes and our mission.Explore information about the Alaska Highway system.  Learn more about Stone Soup Group and the ways they support families in Alaska. If you are located outside of Alaska and are looking for family to family support, please visit Family Voices and Parent Center Hub. Connect with us on social media!Twitter: @NPAF_TweetsInstagram: @Patient_AdvocatesFacebook: National Patient Advocate Foundation ...

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4

September 23, 2020 00:20:42
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People Helping People in the Vulnerable Face of Mortality

Michael Fratkin’s commitment to palliative care began with an important lesson his grandfather taught him when he was a boy. Today, he heads Resolution Care, bringing end of life care to rural communities in Northern, California. Fratkin talks about his commitment to caring for “people not patients,” and the need for a holistic approach to providing the highest level of palliative care to seriously ill people and their families. He is also a leader in telehealth, which has proved to be a very effective tool for reaching his patients in widely separated communities. Visit our website to explore show notes, additional episodes and our mission.Are you in a rural area and need help accessing care? Visit our National Financial Resource Directory Learn more about Resolution Care and their innovative approach using telehealth. Connect with Michael Fratkin on social media!Twitter: @MichaelDFratkinFacebook: Resolution CareLinkedIn: Michael FratkinConnect with us on social media!Twitter: @NPAF_TweetsInstagram: @Patient_AdvocatesFacebook: National Patient Advocate Foundation ...

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3

September 09, 2020 00:29:54
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The Domino Effect of One Person Making a Difference

Jessica Jones has faced a chronic illness most of her life, but that didn’t prepare her for her son’s rare heart disease. Becky Barnes lost her sister to lymphoma and has had more than her share of health problems. Both women have transformed their own experience into commitments to help others in their rural communities in Indiana and Kentucky. Jessica is working to address food insecurity during the pandemic, while Rebecca helps people understand and access health care benefits. Both women speak powerfully to impact that one person can have in changing a community. Visit our website to explore show notes, additional episodes and our mission.Would you like to become a NPAF advocate? Visit our Volunteer OpportunitiesConnect with us on social media!Jessica Jones on Twitter @AdvocateGirlyRebecca Barnes on Twitter @LmtBarnesNPAF on Twitter: @NPAF_TweetsNPAF on Instagram: @Patient_AdvocatesNPAF on Facebook: National Patient Advocate Foundation ...

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2

August 26, 2020 00:20:19
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The 8-Hour Journey to Receive the Care She Deserves

Beth Madison wasn’t surprised when she heard the diagnosis of rheumatoid arthritis. Her family had a strong history of this potentially crippling condition. She was, however, determined to carry on with her life and career as a science professor. She soon learned that her local doctors were unable to provide the advanced, aggressive treatment she needs, Instead of settling for those limited options, Beth used her skills to locate a practice able to give her the care she requires, and regularly makes the eight hour journey to Alabama and back to her rural home in Jackson, Tennessee, Beth also sees her illness as an opportunity to dig deeper into herself and find her reserves of courage, hope and faith. Visit our website to explore show notes, additional episodes and our mission.Do you need help with transportation to your doctor's visit? Visit our National Financial Resource Directory Beth volunteers for Global Healthy Living Foundation. Learn about their support program for patients.Connect with us on social media!NPAF on Twitter: @NPAF_TweetsNPAF on Instagram: @Patient_AdvocatesNPAF on Facebook: National Patient Advocate Foundation ...

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1

August 12, 2020 00:10:56
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Welcome to Advocates in Action by the National Patient Advocate Foundation

Welcome to Advocates in Action, a podcast created by the National Patient Advocate Foundation, a non-profit that develops initiatives promoting equitable access to affordable quality health care through policy action and partnerships. Our primary objective is to prioritize the patient voice in health system delivery reform to achieve person-centered care. We are dedicated to amplifying the powerful stories of individuals and the collective needs of various communities across the country. In our first season we explore rural health in the United States. We feature patients, advocates and providers who are developing innovative, effective approaches to improving health care in their communities.On today’s episode we speak with Executive Vice President for Patient Advocacy and Engagement Gwen Darien. Listen as we introduce the mission of our organization, vision for this podcast and plans for our first season. ...

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