At a young age Mica Saunders developed a reverence and understanding of the elderly thanks to her mom taking her to work with her at an assisted living home. Mica's early exposure inspired her to create her own business Moxie Movez, where she does brain games and physical activity with the elderly to help them keep their mojo and stamina. Her knowledge and passion for this field equipped her to navigate her own personal caregiving journey with both of her grandmothers who were diagnosed with Alzheimer's. Mica shares how she was able to have patience and understanding when her grandmother Daisy forgot who she was and made dancing videos with her grandmother Florence to make every day feel like a birthday. Now she uses her caregiving journey to help others have the tools and resources to support a loved one with dementia.
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Finding appropriate treatment and support for a child with a rare disease is difficult in any circumstances, but it can be extremely challenging in rural Alaska. Specialists are few and far between and travel often involves hundreds of miles and long plane rides. Greta and Mary Middleton first crossed paths as they attempted to find good care for their children with special needs. They now work together to empower other families, locate and access good care and implement policies that address the complex problems they face. Visit our website to explore show notes, additional episodes and our mission.Explore information about the Alaska Highway system. Learn more about Stone Soup Group and the ways they support families in Alaska. If you are located outside of Alaska and are looking for family to family support, please visit Family Voices and Parent Center Hub. Connect with us on social media!Twitter: @NPAF_TweetsInstagram: @Patient_AdvocatesFacebook: National Patient Advocate Foundation ...
What does data collection and analysis tell us about the issues that people face when they face serious illnesses and try to access health care? Kate Gallagher works with the Patient Advocate Foundation to learn what issues patients face, how they deal with these, issues, what gaps exist in accessing equitable health care and what impact does financial toxicity have on people’s live. Kate and her colleagues provide the information critical to understanding both individual experience and bringing about important improvements to our health care system. Visit our website to explore show notes, additional episodes and our mission.Are you in a rural area and need help accessing care? Visit our National Financial Resource Directory Connect with us on social media!Twitter: @NPAF_TweetsInstagram: @Patient_AdvocatesFacebook: National Patient Advocate Foundation ...
Michael Fratkin’s commitment to palliative care began with an important lesson his grandfather taught him when he was a boy. Today, he heads Resolution Care, bringing end of life care to rural communities in Northern, California. Fratkin talks about his commitment to caring for “people not patients,” and the need for a holistic approach to providing the highest level of palliative care to seriously ill people and their families. He is also a leader in telehealth, which has proved to be a very effective tool for reaching his patients in widely separated communities. Visit our website to explore show notes, additional episodes and our mission.Are you in a rural area and need help accessing care? Visit our National Financial Resource Directory Learn more about Resolution Care and their innovative approach using telehealth. Connect with Michael Fratkin on social media!Twitter: @MichaelDFratkinFacebook: Resolution CareLinkedIn: Michael FratkinConnect with us on social media!Twitter: @NPAF_TweetsInstagram: @Patient_AdvocatesFacebook: National Patient Advocate Foundation ...
