Supporting Families Navigating the Healthcare Hurdles in Rural Alaska

Finding the right treatment and support for a child with a rare disease is a challenge anywhere — but in rural Alaska, those challenges are often magnified by geography, limited resources, and the sheer distance between families and specialized care. With specialists few and far between, and travel requiring long, costly plane rides over hundreds of miles, many families face an uphill battle to get the care their children need and deserve.

Greta Goto and Mary Middleton first met while navigating these very struggles for their own children with special needs. Their shared experiences sparked a powerful partnership dedicated to supporting other families facing similar obstacles. Together, they work tirelessly to empower families by helping them locate and access quality care, while advocating for policies designed to address the unique and complex challenges of healthcare delivery in remote communities.

In this inspiring episode, hear how Greta and Mary’s collaboration is transforming lives — offering hope, guidance, and a collective voice for families who often feel isolated. Join us to learn about the real barriers rural families face and the innovative solutions being created to bridge the gaps and ensure no child is left without the care they need.

Explore information about the Alaska Highway system. 

Learn more about Stone Soup Group and the ways they support families in Alaska.

If you are located outside of Alaska and are looking for family to family support, please visit Family Voices and Parent Center Hub.