Finding appropriate treatment and support for a child with a rare disease is difficult in any circumstances, but it can be extremely challenging in rural Alaska. Specialists are few and far between and travel often involves hundreds of miles and long plane rides. Greta and Mary Middleton first crossed paths as they attempted to find good care for their children with special needs. They now work together to empower other families, locate and access good care and implement policies that address the complex problems they face.
Visit our website to explore show notes, additional episodes and our mission.
Explore information about the Alaska Highway system.
Learn more about Stone Soup Group and the ways they support families in Alaska.
If you are located outside of Alaska and are looking for family to family support, please visit Family Voices and Parent Center Hub.
Connect with us on social media!
Twitter: @NPAF_Tweets
Instagram: @Patient_Advocates
Facebook: National Patient Advocate Foundation
Jacqueline Beard has worked for Patient Advocate Foundation for 18 years helping clients find solutions one case at a time. Her area of expertise...
When conducting research how do you build a healthy relationship with the community you are working with? Trust is a key component especially in...
Patients sometimes have to make difficult decisions when pursuing the quality and affordable health care they deserve. When financial navigators and the full care...