The 8-Hour Journey to Receive the Care She Deserves

Episode 2 August 26, 2020 00:20:19
The 8-Hour Journey to Receive the Care She Deserves
Advocates in Action
The 8-Hour Journey to Receive the Care She Deserves
/

Show Notes

Beth Madison wasn’t surprised when she heard the diagnosis of rheumatoid arthritis. Her family had a strong history of this potentially crippling condition. She was, however, determined to carry on with her life and career as a science professor. She soon learned that her local doctors were unable to provide the advanced, aggressive treatment she needs, Instead of settling for those limited options, Beth used her skills to locate a practice able to give her the care she requires, and regularly makes the eight hour journey to Alabama and back to her rural home in Jackson, Tennessee, Beth also sees her illness as an opportunity to dig deeper into herself and find her reserves of courage, hope and faith.


Visit our website to explore show notes, additional episodes and our mission.

Do you need help with transportation to your doctor's visit? Visit our National Financial Resource Directory

Beth volunteers for Global Healthy Living Foundation. Learn about their support program for patients.

Connect with us on social media!

NPAF on Twitter: @NPAF_Tweets
NPAF on Instagram: @Patient_Advocates
NPAF on Facebook: National Patient Advocate Foundation

Other Episodes

Episode 1

September 07, 2022 00:17:45
Episode Cover

Dying to be Heard

The health concerns of Black women are frequently dismissed which contributes to the growing disparities and worse health outcomes. Listen as Adrienne Moore, a two-time cancer survivor, respiratory therapist and patient advocate shares her harrowing story about how identity delayed her cancer diagnosis and inspired her to become an activist seeking health equity for young, Black women whose voices often go unheard.  This season is brought to you in collaboration with ZERO- The End of Prostate Cancer (ZERO). This builds upon the Promoting Health Equity in Cancer Care: A Virtual Workshop hosted by The National Academies of Sciences, Engineering, and Medicine (NASEM) which was co-chaired by Gwen Darien of NPAF and Reggie Tucker-Seeley of ZERO.  ...

Listen

Episode 4

November 17, 2021 00:17:20
Episode Cover

Financial Navigation: Bridging the Gap Between the System and the Patient

Patients sometimes have to make difficult decisions when pursuing the quality and affordable health care they deserve. When financial navigators and the full care team work together to find solutions for patients it results in better outcomes. Through Zinkeng Asonganyi's career he has worked closely in oncology and pharmacy administration which has allowed him to have a deep understanding of the intricacies of financial and social needs. Listen as he shares about the importance of financial navigation and how it bridges the gap between the health system and the patient. ...

Listen

Episode 3

November 15, 2021 00:25:05
Episode Cover

Centering the Experiences of Patients

The experiences of patients should be the center of research, policy development, and health care. Susan Perez has devoted a large portion of her career to ensure that her work not only honors patients but incorporates their input at a high level. In order to truly develop solutions that address both financial and social needs, it's imperative to address the many different stakeholder voices that should be involved. Listen as Susan Perez discusses the importance of not only having cost of care conversations, but also being able to provide solutions when a patient discloses a challenge.   Visit our website to explore show notes, additional episodes and our mission: http://bit.ly/NPAFpod  Connect with us on social media!Twitter: @NPAF_Tweets: http://bit.ly/NPAFtwitter Instagram: @Patient_Advocates: http://bit.ly/NPAFinstagram Facebook: National Patient Advocate Foundation: http://bit.ly/NPAFfacebook  ...

Listen